Motor Neurone Disease

MND Scotland Fun run relay 2020

I’ve been a bit quiet on here the last few months. A lot has been going on the last few months and writing blog posts has not been anywhere near the top of my list of priorities.

I’m going to share something a bit different today, and this will be a very personal post, which isn’t something I’ve really done before.

On 28th May, my Granny passed away after a 7 month battle with Motor Neurone Disease. While we had been somewhat prepared for this, her passing still came as a bit of a shock. She had been in hospital since the end of March but was due to be discharged and able to come home on the 29th May. Unfortunately this wasn’t to be.

Motor Neurone Disease, also known as Amyotrophic lateral sclerosis (ALS) or Lou Gehrig’s Disease, is a debilitating condition. It has no cure and largely no treatment is available either. It is also very difficult to diagnose, and diagnosis usually comes from ruling out every other possible illness. Sufferers experience loss of muscle control and movement. Slurred speech is often (but not always) an early symptom. Eventually MND can result in lack of ability to move, talk, eat and breathe. After diagnosis, life expectancy is usually up to 1 or 2 years.

Watching a loved one suffer this terrible disease is absolutely devastating. Words cannot describe how difficult it is to see someone who is usually full of life slowly fade away.

This has been made even more difficult because of the Covid-19 Pandemic, which meant we were unable to visit my granny the entire two months she was in hospital. Don’t get me wrong, the NHS staff who looked after her did an absolutely amazing job. But it would have been nice to be able to see her in person one last time.

Next week is MND Awareness Week, culminating with Global MND Awareness Day on Sunday 21st June. Myself and several family members will be taking part in MND Scotland’s Fun Run Relay on this day, with each of us walking/running 10km in support of the charity and in memory of my granny. MND Scotland provides a great deal of support to the 400 people who suffer from MND across Scotland, as well as their families. To continue providing this, they rely on donations.

Anyone who knows me will know that I never ask for anything. But today I’m asking if anyone can add to my fundraising page. Any donation, no matter how big or small, would be massively appreciated.

A link to my Just Giving page can be found here:

And more information about MND and the work of MND Scotland can be found here:

Thank you to anyone who has taken the time to read this.



I’ve decided to do a bit of a blog revamp, so say hello to ‘Leah Rachel’!

I’ll hopefully be blogging regularly about the things I like, what I’ve been up to, and just generally whatever I feel like, so give me a follow if you’re interested!